I miss the days when I peed on sticks to test for pregnancy instead of bladder infections—a positive result was so much more exciting. When I discovered this latest infection my words to my husband were I really don’t have time for a bladder infection right now. But whether or not I have time for it, it has arrived. Continue reading “Yes, It’s Another UTI. From Prevention To Diagnosis—My Tips And Tricks Of This Common SCI Annoyance”
Tag: wheelchair life
My 12-week transformation challenge is complete and I know what you’re thinking: She’s not skinny yet. I get it. You hear transformation challenge and expect a huge reveal Biggest Loser style. But as I said in my very first post, the main focus of this challenge with True North Strength and Fitness and Westcoast Nutrition wasn’t on the reflection in the mirror. This wasn’t about finding a quick-fix to achieve dramatic results in a short of amount of time in order to garner attention based on unbelievable before-and-after photos. This was about making a start. Continue reading “12 Weeks Later—Final Thoughts on My Transformation Challenge”
May I ask how the wheelchair happened?
Getting this question from strangers still throws me off my game. I wish it didn’t. I wish I could respond with some wild fictional story like I worked in a zoo and a gorilla threw me against a wall, and then watch their curious eyes go wide. When they inevitably say Wow, really? I would smile and just say No, not really, and go on my way. But that is not how I function. I’m the kind of person who thinks of great comebacks in the shower, days after they are relevant. I’m the kind of person who feels like I would offend these curious strangers by not offering a truthful answer when, in reality, they have just invaded a random person’s privacy by asking said person to share the most complicated and traumatic event of their life. I’m the kind of person who recently reacted like this. Continue reading “May I Ask How the Wheelchair Happened?”
Nobody ever knows how they will respond to trauma—whether it happens to you or somebody you love. In the case of my accident, my family all found their own ways to cope. What did I notice? My husband put all of his energy into caring for me. My dad threw himself into renovating our home and my mother-in-law was consumed with taking care of our children. But my father-in-law, he dove head first into research—he needed to fix this. Continue reading “Me, My Father-In-Law and a Potential Treatment for Spinal Cord Injury”
One of the most common comments I get from people is that my story reminds them to be thankful for the little things—the things that are so easily taken for granted. I would love to say that I’ve learned that lesson for good and always remember to thank my lucky stars for the simple things I am able to do but, alas, I am human. I am eternally thankful that so many of the struggles I faced in the beginning have become ordinary once again. However, as things became easier to do, they also became easier to take for granted. Continue reading “How Peeing My Pants at the Gym Reminded Me to Love the Little Things”
I said I would kill myself when I turned 55. Continue reading “Do I Really Want to Age with a Spinal Cord Injury?”
Have you ever cried after sex? How about in the middle of it – bringing the entire sweaty, messy thing to a crashing halt? I cried last night. It wasn’t the first time – I’m sure it won’t be the last – but it was the first time in a long time and it caught me off guard. Sex after spinal cord injury isn’t something I’ve talked a lot about. I’m not sure why, as it seems I’ve talked about everything else. But for those of you hoping this is some sort of paraplegic’s guide to sex, I’m sorry to disappoint – may your Google search take you to a different corner of the internet. This is a little about sex, a little about loss, a little about adapting and, quite simply, another little piece of my story. Continue reading “Sex Postponed Due to Tears – Try Again Later”
I had my period the day of my accident. I remember laying in the trauma room asking little to no questions about my injury but telling every single nurse who would listen that I had a tampon in. I didn’t stop until I was sure they had taken it out – it seemed unnecessary to add toxic shock syndrome to my list of current complications. Looking back, it was probably one small thing I felt I had control over. But, as all women know, we don’t really have control over our periods. Continue reading “Periods, Birth Control and Spinal Cord Injury”
Spinal cord injury awareness month is still on my mind. My last post talked about the aspects of SCI that I struggle with the most: bladder and bowel control. But I was thinking about what awareness really means and how shining a spotlight on only the challenges can draw focus from the accomplishments and the awesome lives people with SCI are living – it can skew people’s perceptions. And while I think it is incredibly important for everyone to understand the struggles and barriers that someone with a spinal cord injury comes up against, it is equally important to understand that so many of us choose to face those challenges because we still want to live our lives – spinal cord injury and all. There is happiness, adventure and so many amazing things still possible and bringing awareness to SCI means showcasing that as well. Continue reading “Spinal Cord Injury Awareness Month – My Life is Good”
September is spinal cord injury awareness month and today, September 10, happens to mark two and half years since I suffered my injury and became all too aware of this condition. Seconds after I fell I can remember repeating to myself It’s just your legs. It’s just your legs. In that moment, I was comforted. Reminding myself that it was just my legs was reassuring me that I was going to be ok – I was going to survive and still be a mom and a wife and everything else that meant the most to me. I just would do it without walking. And frankly, I truly thought it was just my legs. It didn’t even cross my mind that there would be more to my injury than the obvious physical damage. As it turns out, the legs are just the beginning (and the easiest part).
While everyone’s injury is different, there is a long list of complications resulting from SCI that range from body temperature regulation to muscle spasticity to blood pressure issues and beyond. But the most difficult and devastating aspect of this injury for me (and for many) has been the loss of control over my bladder and bowels. Continue reading “Spinal Cord Injury Awareness Month – My Biggest Unseen Struggle”