Spinal cord injury awareness month is still on my mind. My last post talked about the aspects of SCI that I struggle with the most: bladder and bowel control. But I was thinking about what awareness really means and how shining a spotlight on only the challenges can draw focus from the accomplishments and the awesome lives people with SCI are living – it can skew people’s perceptions. And while I think it is incredibly important for everyone to understand the struggles and barriers that someone with a spinal cord injury comes up against, it is equally important to understand that so many of us choose to face those challenges because we still want to live our lives – spinal cord injury and all. There is happiness, adventure and so many amazing things still possible and bringing awareness to SCI means showcasing that as well. Continue reading “Spinal Cord Injury Awareness Month – My Life is Good”
September is spinal cord injury awareness month and today, September 10, happens to mark two and half years since I suffered my injury and became all too aware of this condition. Seconds after I fell I can remember repeating to myself It’s just your legs. It’s just your legs. In that moment, I was comforted. Reminding myself that it was just my legs was reassuring me that I was going to be ok – I was going to survive and still be a mom and a wife and everything else that meant the most to me. I just would do it without walking. And frankly, I truly thought it was just my legs. It didn’t even cross my mind that there would be more to my injury than the obvious physical damage. As it turns out, the legs are just the beginning (and the easiest part).
While everyone’s injury is different, there is a long list of complications resulting from SCI that range from body temperature regulation to muscle spasticity to blood pressure issues and beyond. But the most difficult and devastating aspect of this injury for me (and for many) has been the loss of control over my bladder and bowels. Continue reading “Spinal Cord Injury Awareness Month – My Biggest Unseen Struggle”
There is a quiet knock on my door. I convince myself it’s nothing even though I know you’re out there. But, you see, you’re very controlling and the last time you came in it took me years to fully recover. I’m going to try and ignore you – pretend you don’t exist – but I’ve dealt with you enough times to know you don’t leave on your own accord and will manipulate me until I take a stand. Even from the outside you have begun to entangle me in your own version of my reality. Continue reading “Hello My Old Unwelcome Friend”
Summer vacation has arrived! With minimal time to catch my breath over the last few weeks of school, I was definitely ready for a little break in the schedule. I’ve always loved summer. I have forever been a big fan of the long days, warm nights and relaxed attitude towards the everyday that comes with the season. But there is now a sense of dread intertwined with the excitement that I feel as summer approaches. Continue reading “Seeking out Summer”
Grief has a way of sneaking up on you when you least expect it. It finds you even when you should be happy; it finds you even when you should be celebrating.
It was announced this week that I have been named this year’s Vancouver Mom Top Blogger! Needless to say, it was a very exciting – albeit overwhelming – Monday for me. Actually, saying I was overwhelmed with the response to the news and all of the comments and messages would be a serious understatement. Insecurity tends to take over me when the spotlight shines in my direction. Saying “thank-you” feels overdone and insufficient but I find myself unable to come up with anything more creative and hope beyond hope that nobody thinks I am inconsiderate or aloof. I spent the day second-guessing my responses while also trying to give myself space to feel proud of the accomplishment. By the time the kids were in bed and I had a moment to reflect, I was left with a feeling I couldn’t quite name. But I’ve got it now. The feeling was guilt. Continue reading “Granting Permission to Let Her Go”
I went to the grocery store today – thrilling, I know. But I don’t go often. It usually either falls on my husband or we order online for pick-up or delivery. But the dog was out of food this morning and we didn’t have anything planned for dinner, so I figured I could make a quick stop. It may sound silly but grocery shopping makes me anxious. Between the high shelves, navigating carts and getting everything back to my car, I prefer the online method of grocery shopping much more. However, this trip would be easy. We only needed six things of which only one I expected to be too high (damn dog food). No need for a cart – I would just use a basket – and I could even do self-checkout. It would be simple; It should have been simple. Continue reading “Obviously Invisible”
“He’s her lobster”. If you’re a Friends fan, you know exactly what I’m talking about. If you aren’t a Friends fan, well, you should be. But, surprise! Phoebe was wrong and lobsters don’t actually mate for life. What do mate for life? Beavers, penguins and lovebirds (obviously) just to name a few. As humans, we don’t always find ourselves on this list but sometimes we connect with another person who takes the fear out of making a lifelong commitment. You survive together when it’s harder than you ever imagined and you thrive together when life is good. Navigating my spinal cord injury (SCI) while keeping our marriage together has had its challenges, but I never once truly doubted if we would last. He is my lobster penguin. Continue reading “Three Things Paralysis Taught Me About Marriage”
You and me, we are different. In so many ways, we are different. That in itself is not unique to our situation. From Starbucks orders to philosophies on life and everything in-between, finding a fellow female who checks off all the same boxes that you do would be an impossible task. Even so, there is something about our contrasting physical abilities that seems to set apart my mom life from yours. Early on in my injury that rift between your motherhood and mine felt as wide as an ocean. But as time progressed, I realized that rift – and our differences – is actually minor and insignificant. I think that as human beings, and as mothers, we are more alike than you may realize. Continue reading “My Letter to an Able-Bodied Mother”
I’m going to let you in on a little secret. I was never destined to be a world class athlete. I wanted to run at a reasonable pace around my neighborhood, keep up in a backyard soccer game, hike a few local trails with friends and buy an inexpensive bike from Wal-Mart to join in on those family rides around the block. Maybe I’d attempt some home workouts now and then. Maybe we would have all tried skiing together eventually. The point is, I liked being active and outdoors as long as it was relaxed and simple. I never did much that required a lot of equipment; I was happy with a pair of good runners and a yoga mat. But then there was that fall – and this spinal cord injury – and getting reasonably active got unreasonably complicated. Continue reading “In Search of a Runner’s High”
What is strength? In the midst of this women’s empowerment wave we are riding, how do we define what it means to be a strong woman? We strive to be them, we strive to raise them and we strive to surround ourselves with them. But what is it that makes them? The definitions are evasive and become skewed by perception and tainted by experience. Strength is a very personal battle. It is having the persistence to go after the things in life that you deem important. It is about knowing yourself and your boundaries. It is about prioritizing your life so that it feels authentic to you. And because everyone has their own idea of what life is all about and what comes easily to one person may require a lot of effort from another, we end up with personal beliefs on what it means to have strength. Continue reading “Defining Strength”