Spinal cord injury awareness month is still on my mind. My last post talked about the aspects of SCI that I struggle with the most: bladder and bowel control. But I was thinking about what awareness really means and how shining a spotlight on only the challenges can draw focus from the accomplishments and the awesome lives people with SCI are living – it can skew people’s perceptions. And while I think it is incredibly important for everyone to understand the struggles and barriers that someone with a spinal cord injury comes up against, it is equally important to understand that so many of us choose to face those challenges because we still want to live our lives – spinal cord injury and all. There is happiness, adventure and so many amazing things still possible and bringing awareness to SCI means showcasing that as well. Continue reading “Spinal Cord Injury Awareness Month – My Life is Good”
Category: Marriage & Family Life
Do you have a favourite place? Somewhere that holds a special place in your heart? A place you return to knowing it will look the same and feel the same every time you go there as though it stays frozen in time during your absence? The first time I came here, I was sixteen years old. It quickly became one of my favourite places. Continue reading “How Do You Go Back?”
“Wisdom begins in wonder” – Socrates
Every parent celebrates upon hearing their little one’s first words. But parenthood takes a dramatic turn for the wine cabinet when a child learns the word “why”. The relentless questions reveal the outer limits of our patience and, all too soon, our own knowledge. Once children figure out that the answers exist somewhere, “Can you google it then Mommy?” becomes another question in their repertoire. Their stream-of-consciousness method of questioning could be turned into the world’s most lethal drinking game but, I try to remind myself of the quote above that suggests we don’t learn by being complacent, we learn by being curious. Continue reading “Kids Will Be Curious”
Standing isn’t something I have done much of in the last 2 years. I imagine the shock value in that opening statement is minimal – I am paralyzed after all. But the equipment does exist to make it happen. I recently was able to have a trial standing frame in our home and my boys were incredibly excited to see me vertical (my daughter had been with me on previous occasions when I tried it). However as soon as I was up, I wanted to come down. I was hit with an unexpected and unsettling feeling as I stood next to my sons for the first time in over two years. They of course thought it was “so cool” so I held my smile until the novelty wore off. They retreated to their Rubik’s Cubes and books while I was left standing there without the ability to quickly retreat into anything. Continue reading “No Mama, You Will Never Be Everything but You Will Be Enough”
Summer vacation has arrived! With minimal time to catch my breath over the last few weeks of school, I was definitely ready for a little break in the schedule. I’ve always loved summer. I have forever been a big fan of the long days, warm nights and relaxed attitude towards the everyday that comes with the season. But there is now a sense of dread intertwined with the excitement that I feel as summer approaches. Continue reading “Seeking out Summer”
“He’s her lobster”. If you’re a Friends fan, you know exactly what I’m talking about. If you aren’t a Friends fan, well, you should be. But, surprise! Phoebe was wrong and lobsters don’t actually mate for life. What do mate for life? Beavers, penguins and lovebirds (obviously) just to name a few. As humans, we don’t always find ourselves on this list but sometimes we connect with another person who takes the fear out of making a lifelong commitment. You survive together when it’s harder than you ever imagined and you thrive together when life is good. Navigating my spinal cord injury (SCI) while keeping our marriage together has had its challenges, but I never once truly doubted if we would last. He is my lobster penguin. Continue reading “Three Things Paralysis Taught Me About Marriage”
Raising our children to be accepting of all types of people has always been a top priority for me and my husband but it was never a personal battle until after my injury. As two young, Caucasian, able-bodied, straight people we were never in an obvious minority. We never felt singled out for attributes we had no control over and we blended in to our community without effort. Then, all of a sudden, I found myself in a wheelchair and we didn’t blend in as easily as we had in the past. With stares coming from numerous directions, our determination to raise accepting children only increased. But how? How do you integrate something into their little lives if it isn’t something you see very often? How do you teach something without pointing it out and bringing attention to it? Then my children – and every child I’ve met since my accident -taught me a thing or two about acceptance. Continue reading “When Your Daughter Discovers You’re Different”
I’m holding a grudge against Easter and I’m trying to decide if it is justified or dramatic. Spoiler alert: writing this helped me figure it out. Everyone always says that the firsts will be hard when dealing with grief – especially holidays and traditions. And that first year was definitely quite brutal. Every holiday, birthday and season brought about change in how I could partake in the celebrations and events that have always been highlights in my year. But Easter was significant. Easter came just a couple of weeks after my accident and ‘different’ doesn’t really even begin to describe how that first holiday post-injury went down. And even though this last Sunday was the third Easter since my accident I still had a really hard time planning and preparing for it. I still struggle to find the holiday spirit that, in the past, came so easily. Continue reading “That One Easter at Rehab”
“Clowns to the left of me.
Jokers to the right.
Here I am, stuck in the middle with you.”
This lyric right here is my theme for Valentine’s Day this year. When you are married with children, life resides on a scale of “they are so sweet when they’re sleeping” to “OK, how many kids did we leave the house with? Because now there is only one”. With three children, it is rare that someone isn’t in need of something and when you are being pulled in numerous directions it is grounding and comforting to have a person in the trenches with you. Someone who partakes in life beside you, however it comes. Love changes as we get older and, to me, it is our actions within the day-to-day that truly express love. And so, when Valentine’s Day comes around, I find that the recognition of one another in our relationship is usually short and laced with sarcasm because taking one day to ensure your partner knows they’re loved seems insufficient and forced. It’s probably the one day out of the year my husband and I don’t have expectations on being seen, important and cared for. Because married love isn’t about this one seemingly romantic day. It’s about the other 364 days of the year. Continue reading “This Is Valentine’s Day”
A lot of people seem think that three kids constitutes a big family. I suppose by 2018 standards it does (especially when mom and dad are just breaking into their thirties). I always wanted a large family and it isn’t a secret that I’m still trying to cope with the idea that I won’t have any more children. While some people end up with large families somewhat accidentally, others find their way there with purpose and intent. One of my main purposes in having multiple children was to give them the shared experiences of childhood. The large age gap between my older siblings and me meant that I grew up, essentially, as an only child. My mom and I were very close and my childhood was wonderful but I always wondered what it would have been like to venture through those early stages of life alongside a sibling. I didn’t want my children to have to carry their childhood memories alone but instead share them with someone. I never thought that some of those memories could be ones from which they need to heal. Continue reading “Their Childhood. My Purpose”