Raising our children to be accepting of all types of people has always been a top priority for me and my husband but it was never a personal battle until after my injury. As two young, Caucasian, able-bodied, straight people we were never in an obvious minority. We never felt singled out for attributes we had no control over and we blended in to our community without effort. Then, all of a sudden, I found myself in a wheelchair and we didn’t blend in as easily as we had in the past. With stares coming from numerous directions, our determination to raise accepting children only increased. But how? How do you integrate something into their little lives if it isn’t something you see very often? How do you teach something without pointing it out and bringing attention to it? Then my children – and every child I’ve met since my accident -taught me a thing or two about acceptance. Continue reading “When Your Daughter Discovers You’re Different”
I’m holding a grudge against Easter and I’m trying to decide if it is justified or dramatic. Spoiler alert: writing this helped me figure it out. Everyone always says that the firsts will be hard when dealing with grief – especially holidays and traditions. And that first year was definitely quite brutal. Every holiday, birthday and season brought about change in how I could partake in the celebrations and events that have always been highlights in my year. But Easter was significant. Easter came just a couple of weeks after my accident and ‘different’ doesn’t really even begin to describe how that first holiday post-injury went down. And even though this last Sunday was the third Easter since my accident I still had a really hard time planning and preparing for it. I still struggle to find the holiday spirit that, in the past, came so easily. Continue reading “That One Easter at Rehab”
We all go through periods in our lives where we feel like we are dealing with one difficult situation after another. It isn’t always end-of-the-world type stuff. Sometimes it’s just the fact that your family has been sick for seemingly forever and another ear infection is on the horizon. And sometimes it’s a lot more than that. Either way, it can feel like you’re stuck inside a never-ending storm. Whenever I find myself in this mindset I’ll joke that I should really catch a break because I have a spinal cord injury after all. I can laugh about this now but there was definitely a time I felt quite confident this should be true. I’ve said so many times that an injury like mine makes you realize life doesn’t stop. People choose to move on after injury/illness/loss as best they can because they find out pretty quickly that life will move on without them if they don’t get on board. I think that sometimes the more difficult realization is that the realities of life don’t stop for challenges. No matter the reality and no matter the challenges. Continue reading “Misguided Entitlement”
March 10, 2018 marks two years of life with a spinal cord injury. Two years that have passed in that familiar fashion where days are long but months and years are short. I know many people who say that one day I will lose track of the years, but I know myself better than that. I find dates orienting and acknowledging the time that has passed, grounding. When I think back to how I felt this time last year, at one year post injury, it amazes me how much my perspective has shifted. I now find myself more comfortable and confident in this body that – for so long – felt strange and unfamiliar. And a wheelchair that once felt foreign now feels like an extension of myself. While two years in the grand scheme of a lifetime is relatively short, those years can hold within them potential to be significant. With all of the changes that I have experienced, I would be amiss to say that these two years haven’t left a lasting mark. Continue reading “Two Years with a Spinal Cord Injury: What I’ve Lost and What I’ve Learned”
The canvas before the paint. The stage before the performance. The staff before the notes and the page before the words. All of them blank. All of them empty. All of them with limitless possibilities. There are no blank slates in life – only new journeys in the midst of the old ones. Journeys that encompass everything we have been until that point in time. But every new adventure holds within it choice, potential and the ability to change. In those early moments of new beginnings there is a resemblance of a blank, empty slate. It’s not as free and clear as art waiting to be created but it is vast with possibility. But whether the journeys are straightforward or complex, they become who we are. Continue reading “Life on the Road Less Travelled”
“Clowns to the left of me.
Jokers to the right.
Here I am, stuck in the middle with you.”
This lyric right here is my theme for Valentine’s Day this year. When you are married with children, life resides on a scale of “they are so sweet when they’re sleeping” to “OK, how many kids did we leave the house with? Because now there is only one”. With three children, it is rare that someone isn’t in need of something and when you are being pulled in numerous directions it is grounding and comforting to have a person in the trenches with you. Someone who partakes in life beside you, however it comes. Love changes as we get older and, to me, it is our actions within the day-to-day that truly express love. And so, when Valentine’s Day comes around, I find that the recognition of one another in our relationship is usually short and laced with sarcasm because taking one day to ensure your partner knows they’re loved seems insufficient and forced. It’s probably the one day out of the year my husband and I don’t have expectations on being seen, important and cared for. Because married love isn’t about this one seemingly romantic day. It’s about the other 364 days of the year. Continue reading “This Is Valentine’s Day”
A lot of people seem think that three kids constitutes a big family. I suppose by 2018 standards it does (especially when mom and dad are just breaking into their thirties). I always wanted a large family and it isn’t a secret that I’m still trying to cope with the idea that I won’t have any more children. While some people end up with large families somewhat accidentally, others find their way there with purpose and intent. One of my main purposes in having multiple children was to give them the shared experiences of childhood. The large age gap between my older siblings and me meant that I grew up, essentially, as an only child. My mom and I were very close and my childhood was wonderful but I always wondered what it would have been like to venture through those early stages of life alongside a sibling. I didn’t want my children to have to carry their childhood memories alone but instead share them with someone. I never thought that some of those memories could be ones from which they need to heal. Continue reading “Their Childhood. My Purpose”
Confession. I don’t know how to put my wheelchair together. I mean, I understand the general placement of everything (big wheels in the back, small wheels in the front) but that’s about as far as my wheelchair maintenance knowledge takes me. When my legs were my main form of mobility I didn’t need to worry about nuts, bolts, lubricant and flat tires. Now, maintaining my mobility equipment requires a little bit more effort and know-how. At least that’s what my husband keeps telling me. Continue reading “I’m Clueless About My Wheelchair”
The following post is one that I wrote six months before my accident. As I read it back tonight it took on a very different meaning than what was originally intended. When I first wrote it I believed I was talking to myself 20 years or so in the future. Little did I know that, 6 months later, t -hese would be the moments and the memories that would drive my recovery and my fight to get home. A good “throwback Thursday” reminder to look for the special moments in the everyday. You never know when you might just long for ordinary. Continue reading “Give Me Ordinary”
In an effort to pull both my house and me out of our Christmas hangover, we spent most of Sunday attempting to get organized. We went through all the junk that, over the holidays, accumulated on the counters and then got shoved into drawers in a hurry before company showed up. We sorted through the never-ending piles of paper that seem to come from every corner of our lives. While it always feels refreshing to de-clutter, organizing and purging does have its downsides. During this process, I always seem to come across little reminders – difficult reminders – of my accident, of life before, or of what has changed. This round of organization wasn’t any different, however along with the reminders, I found there was also a spotlight on how far I have come. It is the second time lately my attention has been drawn to this and it has resulted in a lot of mixed emotions. But after the process was over I was left with a smile on face because of the very last item that I found. Continue reading “From Then Until Now”